2017;6(2):e004862.
237.SharpeD,RossiterL.Siblingsofchildrenwitha
chronicillness:ameta-analysis.JPediatr
Psychol.2002;27(8):699–710.
238.PinelliJ,SaigalS,WuY,etal.Patternsof
changeinfamilyfunctioning,resources,coping
andparentaldepressioninmothersandfathers
ofsicknewbornsoverthefirstyearoflife.J
NeonatalNurs.2008;14:156–165.
239.LawokoS.Factorsinfluencingsatisfactionand
well-beingamongparentsofcongenitalheart
diseasechildren:developmentofaconceptual
modelbasedontheliteraturereview.ScandJ
CaringSci.2007;21(1):106–117.
240.WernerH,LatalB,ValsangiacomoBuechelE,
BeckI,LandoltMA.Theimpactofaninfant's
severecongenitalheartdiseaseonthefamily:a
prospectivecohortstudy.CongenitHeartDis.
2013;9(3):203–210.
241.LawokoS,SoaresJJF.Distressandhopelessness
amongparentsofchildrenwithcongenitalheart
disease,parentsofchildrenwithotherdiseases,
andparentsofhealthychildren.JPsychosom
Res.2002;52(4):193–208.
242.KovacsAH,SaidiAS,KuhlEA,etal.
Depressionandanxietyinadultcongenitalheart
disease:predictorsandprevalence.IntJCardiol.
2009;137(2):158–164.
243.CelermajerD,StrangeG,CordinaR,etal.
Congenitalheartdiseaserequiresalifetime
continuumofcare:acallforaregionalregistry.
HeartLungCirc.2016;25(8):750–754.
244.SableC,FosterE,UzarkK,etal.Bestpractices
inmanagingtransitiontoadulthoodfor
adolescentswithcongenitalheartdisease:the
transitionprocessandmedicalandpsychosocial
issues:ascientificstatementfromtheAmerican
HeartAssociation.Circulation.
2011;123(13):1454–1485.
245.YawnBP,DietrichAJ,WollanP,etal.TRIPPD:
apractice-basednetworkeffectivenessstudyof
postpartumdepressionscreeningand
management.AnnFamMed.2012;10(4):320–
329.
246.GrazianiF,DeloguAB.Evaluationofadults
withcongenitalheartdisease.WorldJPediatr
CongenitHeartSurg.2016;7(2):185–191.
247.FisherDJ,GevaT,FeltesTF,etal.Lifelong
managementofpatientswithasinglefunctional
ventricle:aprotocol.TexHeartInstJ.
1995;22(4):284–295.
248.AndersonPA,BreitbartRE,McCrindleBW,et
al.TheFontanpatient:inconsistenciesin
medicationtherapyacrosssevenpediatricheart
networkcenters.PediatrCardiol.
2010;31(8):1219–1228.
249.GnanappaGK,CelermajerDS,ShollerGF,etal.
Thelong-termmanagementofchildrenand
adultswithaFontancirculation:asystematic
reviewandsurveyofcurrentpracticein
AustraliaandNewZealand.PediatrCardiol.
2017;38(1):56–69.
250.BaumgartnerH,BonhoefferP,DeGrootNM,et
al.ESCGuidelinesforthemanagementof
grown-upcongenitalheartdisease(newversion
2010).EurHeartJ.2010;31(23):2915–2957.
251.CliftP,CelermajerD.ManagingadultFontan
patients:wheredowestand?EurRespirRev.
2016;25(142):438–450.
252.HebsonC,BookW,ElderRW,etal.“Frontiers
inFontanfailure:asummaryofconference
proceedings”.CongenitHeartDis.
2017;12(1):6–16.
253.WarnesCA,WilliamsRG,BashoreTM,etal.
ACC/AHA2008GuidelinesfortheManagement
ofAdultswithCongenitalHeartDisease:
executiveSummary:areportoftheAmerican
CollegeofCardiology/Americanheart
AssociationTaskForceonPracticeGuidelines
(writingcommitteetodevelopguidelinesforthe
managementofadultswithcongenitalheart