Andersons pediatric cardiology 2064

October16,2013].
178.GersonyWM,HayesCJ,DriscollDJ,etal.
Secondnaturalhistorystudyofcongenitalheart
defects.Qualityoflifeofpatientswithaortic
stenosis,pulmonarystenosis,orventricular
septaldefect.Circulation.1993;87(suppl2):I52–
I65.
179.MarinoBS,TomlinsonR,WernovskyG,etal.
Validationofthepediatriccardiacqualityoflife
inventory.Pediatrics.2010;126:498–508.
180.LatalB,HelfrichS,FischerJE,BauersfeldU,
LandoltMA.Psychologicaladjustmentand
qualityoflifeinchildrenandadolescents
followingopen-heartsurgeryforcongenital
heartdisease:asystematicreview.BMCPediatr.
2009;9:6.
181.MussattoK,TweddellJ.Qualityoflifefollowing
surgeryforcongenitalcardiacmalformationsin
neonatesandinfants.CardiolYoung.
2005;15(suppl1):174–178.
182.UzarkK,JonesK,SlusherJ,etal.Qualityoflife
inchildrenwithheartdiseaseasperceivedby
childrenandparents.Pediatrics.
2008;121:e1060–e1067.
183.MellionK,UzarkK,CassedyA,etal.Healthrelatedqualityoflifeoutcomesinchildrenand
adolescentswithcongenitalheartdisease.J


Pediatr.2014;164:781–788.
184.StreinerDL,NormanGR.HealthMeasurement
Scales.2nded.OxfordUniversityPress:New

York,NY;1995.
185.MarinoBS,SheraD,WernovskyG,etal.The
developmentofthepediatriccardiacqualityof
lifeinventory:aqualityoflifemeasurefor
childrenandadolescentswithheartdisease.
QualLifeRes.2008;17:613–626.
186.MarinoBS,DrotarD,CassedyA,etal.External
validityofthepediatriccardiacqualityoflife
inventory.QualLifeRes.2011;20:205–214.
187.WrayJ,FranklinR,BrownK,CassedyA,
MarinoBS.Testingthepediatriccardiacquality
oflifeinventoryintheUnitedKingdom.Acta
Paediatr.2013;102:e68–e73.
188.WrayJ,BrownK,FranklinR,CassedyA,
MarinoBS.Assessingthegeneralisabilityofthe
pediatriccardiacqualityoflifeinventoryinthe
UnitedKingdom.CardiolYoung.2014;24:220–
228.
189.CulbertEL,AshburnDA,Cullen-DeanG,etal.
Qualityoflifeofchildrenafterrepairof
transpositionofthegreatarteries.Circulation.
2003;108:857–862.
190.Hovels-GurichHH,KonradK,WiesnerM,etal.
Longtermbehaviouraloutcomeafterneonatal


arterialswitchoperationfortranspositionofthe
greatarteries.ArchDisChild.2002;87:506–510.
191.BrosigCL,MussattoKA,KuhnEM,Tweddell
JS.Psychosocialoutcomesforpreschool

childrenandfamiliesaftersurgeryforcomplex
congenitalheartdisease.PediatrCardiol.
2007;28:255–262.
192.DeMasoDR,LaurettiA,SpiethL,etal.
Psychosocialfactorsandqualityoflifein
childrenandadolescentswithimplantable
cardioverter-defibrillators.AmJCardiol.
2004;93:582–587.
193.CzosekRJ,BonneyWJ,CassedyA,etal.Impact
ofcardiacdevicesonthequalityoflifein
pediatricpatients.CircArrhythmElectrophysiol.
2012;5:1064–1072.
194.SchaeferC,vonRheinM,KnirschW,etal.
Neurodevelopmentaloutcome,psychological
adjustment,andqualityoflifeinadolescents
withcongenitalheartdisease.DevMedChild
Neurol.2013;55:1143–1149.
195.BrattEl,MoonsP.Fortyyearsofquality-of-life
researchincongenitalheartdisease:temporal
trendsinconceptualandmethodologicalrigor.
IntJCardiol.2015;6:1951.
196.WilliamsDL,GelijnsAC,MoskowitzAJ,etal.
Hypoplasticleftheartsyndrome:valuingthe